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This site is written from the sibling's point of view, but it is aimed at anyone with an interest in siblings of disabled children (and adults). This includes siblings themselves, their parents, family and friends, as well as any professionals who come into contact with siblings.
As you may have guessed by this point, I'm a sibling myself. I have one brother, Timothy, who is 2 years younger than me. He doesn't have a specific diagnosis, but he has had epilepsy, CP, severe asthma and profound multiple learning difficulties from birth. He has very little muscle control or communication, uses a wheelchair, and is registered blind (although he does have some peripheral vision).
In 2003, I was asked to give a talk to the Annual Conference of the ACH Palliative Care Forum. Although most of them came into regular contact with siblings, they were often unaware as to the extent of the effect of a disabled sibling.
The text of the talk is now available online here. If you wish to use portions of the talk, please contact me for permission.